diagnosis

In my Father’s Image

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fathers and sons

Recently, my son became very ill, and as the doctors asked me about our family health history, I found myself becoming angry again at my ex-husband.  The anger wasn’t because he deserted me and his children (though I find that seeping back in once in a while); the anger was due to how he left us. He made it impossible for me to ever find out if the symptoms my son is having could be related back to his family history; therefore, there is this big unknown part of my children’s history that I would like to access, so I can help them be healthy for themselves and for their future children.

I took this photo of my son and husband (at the time) right after my father’s funeral.  My husband said that my losing my father reminded him of how quickly time passes and the importance of cherishing every precious moment we have with our children. The portrait symbolized to me the relationship between a parent and their child and how important it is, as parents, to guide our children to the future that is waiting for them.  I never thought that my own husband would disregard the gift’s God has bestowed upon us.  I no longer try to understand what made my husband do the things he did, as it is out of my control and is time wasted. Yet, inexcusably I still witness daily the internal pain and damage he left behind. I always thought that maybe he was too damaged from his own childhood to ever be a parent, but three years after deserting his own children, he had another one.

It may seem cruel, but I sometimes view my ex as created in Hitler’s (interesting enough, he liked his employees to call him that) image because when our marriage became the darkest is when he could not handle his youngest son (in this photo) being different from other children.  I’ve mentioned in my blog before that my son has Asperger’s Syndrome, and my ex-husband had no patience or empathy for the symptoms that developed from my son’s diagnosis. I almost think that he kept having children until he could create the perfect specimen of himself.  My heart aches for his new child that he had with his new wife, and I pray for the innocent boy’s safety every day.

This photo has been hidden in the back of my closet for years in fear of it bringing back the pain of the past for my children. However, this week as I have been filling out medical forms for specialists for my beautiful, kind-hearted son, I looked back at this portrait and realize that it doesn’t have to represent the father that walked away, but it reminds me of the characteristics my son shares with his maternal grandfather that I sadly lost that Thanksgiving week in 2000. My son grew up not having the guidance of either a father or a grandfather, but I have kept my father’s image alive within my son, by sharing his stories, his morals, his ethics, his love, and so on.  As I look into my son’s eyes, the eyes that trust that I will find him the best care and answers this week, I see my father’s soul looking back at me.  My son may have been born from a man who has no soul, but that doesn’t mean that’s how my son’s story ends.

My son has a heart of gold and carries his grandfather Jim’s heart and soul with him everywhere (that is what I see in this portrait now), and as long as I bring him up with wonderful people surrounding him that also share those similar ethics, morals, and love, my child will take that into his future and it will continue to touch the ones fortunate enough to come into his life. I will never be convinced that blood defines a family, but instead family is defined by the incredible people who lift us up and encourage us to live each day being better than we were the day before.

See the whole person, not the label

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Dylan Source

This past week, my children and I presented research on Asperger’s Syndrome at the university that I attend.  I also presented last year, so this wasn’t a new experience for me, but it was for my children.  They are only 20 and 17.  My daughter attends college with me, but my son is a high school student and consequently happens to have a diagnosis of Asperger’s Syndrome.

Our journey navigating the school system, and just society in general, has been a long, difficult road; therefore, for him to stand up in front of all these people (and to step out of his comfort zone), and not only talk on the subject, but to share his deepest thoughts, was the most amazing, brave thing I have ever witnessed.  When I grow up, I want to be just like my kids. They are determined to bring awareness to the subject, so that they can hopefully decrease stigmatism.

At the end of our presentation, my son stood up in front of the room and read the following poem that he wrote.  There wasn’t a dry eye in the room when he finished.   His honesty as he read his words was inspirational.  I asked him today if I could share his words on my blog and he said of course.  For years, educators have told me that I had unrealistic expectations for my son.  Thank goodness I didn’t listen to them.  Never let others tell you that you can’t do anything.  Only we know what we are truly capable of.

See the whole person, not the label

What is Asperger’s Syndrome?
Mental Illness?  I think not.
How does someone get Asperger’s Syndrome?
A gift given to children through birth or heredity.

Mental Illness.  I think not.
I am different; I am socially awkward.
A gift given to children through birth or heredity.
I don’t have a clue.

I am different; I am socially awkward.
I have significantly increased intelligence.
I don’t have a clue.
I have sporadic, hyperactive behavior.

I have significantly increased intelligence.

I am socially awkward.

I have sporadic, hyperactive behavior.

I grasp academics slower than others.

I am socially awkward.

I do not like being labeled.

I grasp academics slower than others.

I feel like another product on a conveyor belt.

I do not like being labeled.

Others see me as indistinguishable from other people with the same label.

I feel like another product on a conveyor belt.

Quit putting me in a category.

Others see me as indistinguishable from  other people with the same label.

I am a loyal and generous person.

Quit putting me in a category.

I am fun, outgoing, and energetic.

I am a loyal and generous person.

In the future, I would not want people to know I have Asperger’s Syndrome.

I am fun, outgoing, and energetic.

Asperger’s Syndrome does not define me.

In the future, I would not want people to know I have Asperger’s Syndrome.

The early years of my life, they held me back.

Asperger’s Syndrome does not define me.

Over the years, I learned social cues, behaviors, rules, respect….things that come easier to normal children

The early years of my life, they held me back.

Teachers put no effort into providing the education I deserve.

Over the years, I learned social cues, behaviors, rules, respect….things that come easier to normal children

Teachers put me in a box and never try to approach my learning in a different way.

Teachers put no effort into providing the education I deserve.

I feel judged. I feel isolated. I feel helpless.

Teachers put me in a box and never try to approach my learning in a different way.

My teacher’s motto “I can’t drop everything to focus on your problem”

I feel judged. I feel isolated. I feel helpless.

Don’t judge a book by its cover.

My teacher’s motto “I can’t drop everything to focus on your problem”

Ignore the label and treat me like a human being; a human being who is effected by your judgment.

Don’t judge a book by its cover.
How does someone get Asperger’s Syndrome?
Ignore the label and treat me like a human being; a human being who is effected by your judgment.
What is Asperger’s Syndrome?

–          By D. G. @2014

Asperger’s Syndrome does not define my child

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Asperger's Syndrome does not define my child

If people only see Asperger’s Syndrome when they see my son, then they have denied themselves the opportunity of knowing the most loving, creative, intelligent, silly, loyal, compassionate, ( the list is endless) person I know. These characteristics define him, not a diagnosis. If only everyone had the opportunity to see the world through his eyes, their lives would be richer for it. He is my heart!