I’m just toying with my artistic side today. I was studying when I looked up and saw this beautiful shadow looking back at me. It reminded me of my son and the shadows that follow him. I wanted him to know that his shadows are only there because of the bright, shining light that radiates from his beautiful soul. His favorite artist is Lady Gaga; therefore, I wanted to reflect her words the best way I could. I can only hope for my son that he can one day live in a world that respects individuality and one where he can walk down the street and feel free to be himself without being afraid to have bullies and haters lurking in the shadows he still fears. We all have those shadows around the corner, but today I choose to be a light for those who may still be afraid to turn theirs on.
Asperger’s Syndrome
See the whole person, not the label
This past week, my children and I presented research on Asperger’s Syndrome at the university that I attend. I also presented last year, so this wasn’t a new experience for me, but it was for my children. They are only 20 and 17. My daughter attends college with me, but my son is a high school student and consequently happens to have a diagnosis of Asperger’s Syndrome.
Our journey navigating the school system, and just society in general, has been a long, difficult road; therefore, for him to stand up in front of all these people (and to step out of his comfort zone), and not only talk on the subject, but to share his deepest thoughts, was the most amazing, brave thing I have ever witnessed. When I grow up, I want to be just like my kids. They are determined to bring awareness to the subject, so that they can hopefully decrease stigmatism.
At the end of our presentation, my son stood up in front of the room and read the following poem that he wrote. There wasn’t a dry eye in the room when he finished. His honesty as he read his words was inspirational. I asked him today if I could share his words on my blog and he said of course. For years, educators have told me that I had unrealistic expectations for my son. Thank goodness I didn’t listen to them. Never let others tell you that you can’t do anything. Only we know what we are truly capable of.
See the whole person, not the label
What is Asperger’s Syndrome?
Mental Illness? I think not.
How does someone get Asperger’s Syndrome?
A gift given to children through birth or heredity.
Mental Illness. I think not.
I am different; I am socially awkward.
A gift given to children through birth or heredity.
I don’t have a clue.
I am different; I am socially awkward.
I have significantly increased intelligence.
I don’t have a clue.
I have sporadic, hyperactive behavior.
I have significantly increased intelligence.
I am socially awkward.
I have sporadic, hyperactive behavior.
I grasp academics slower than others.
I am socially awkward.
I do not like being labeled.
I grasp academics slower than others.
I feel like another product on a conveyor belt.
I do not like being labeled.
Others see me as indistinguishable from other people with the same label.
I feel like another product on a conveyor belt.
Quit putting me in a category.
Others see me as indistinguishable from other people with the same label.
I am a loyal and generous person.
Quit putting me in a category.
I am fun, outgoing, and energetic.
I am a loyal and generous person.
In the future, I would not want people to know I have Asperger’s Syndrome.
I am fun, outgoing, and energetic.
Asperger’s Syndrome does not define me.
In the future, I would not want people to know I have Asperger’s Syndrome.
The early years of my life, they held me back.
Asperger’s Syndrome does not define me.
Over the years, I learned social cues, behaviors, rules, respect….things that come easier to normal children
The early years of my life, they held me back.
Teachers put no effort into providing the education I deserve.
Over the years, I learned social cues, behaviors, rules, respect….things that come easier to normal children
Teachers put me in a box and never try to approach my learning in a different way.
Teachers put no effort into providing the education I deserve.
I feel judged. I feel isolated. I feel helpless.
Teachers put me in a box and never try to approach my learning in a different way.
My teacher’s motto “I can’t drop everything to focus on your problem”
I feel judged. I feel isolated. I feel helpless.
Don’t judge a book by its cover.
My teacher’s motto “I can’t drop everything to focus on your problem”
Ignore the label and treat me like a human being; a human being who is effected by your judgment.
Don’t judge a book by its cover.
How does someone get Asperger’s Syndrome?
Ignore the label and treat me like a human being; a human being who is effected by your judgment.
What is Asperger’s Syndrome?
– By D. G. @2014
Today is World Autism Awareness Day!
Is selling the story more important than the people it hurts?
Does the news need to blame someone so much that they don’t care if they stigmatize a whole group of people who have done nothing wrong? Tonight I received a text from a colleague asking me if I heard the Sandy Hook killer had Asperger’s Syndrome? I thought I was going to be ill. I really thought the news had let go of that. I remember when the shooting happened, and a diner owner had reported that to the news. He said the mom had told him once (years earlier) that her son was being tested for Asperger’s Syndrome. TESTED!!! Tested does not equal a diagnosis, and even if it did, it does not mean that was the cause for the shooting.
The shooters own brother said he had been diagnosed with a personality disorder. That could mean so many things, but again did not mean Asperger’s Syndrome. And just so we are clear, when the brother was interviewed by cnsnews.com, he was interviewed under anonymity because he was under orders from the investigators not to disclose information to the media. All of the sources I have searched up weren’t credible enough to say for sure or even to say “could be” or “might be” or “we have an inkling” that the shooter had Asperger’s Syndrome. Where were the interviews with the shooter’s therapists and doctors? You know, the ones who were actually treating him.
Having a child with Asperger’s Syndrome, I know first hand the stigma he faces in our world without having the national news pointing a finger at him. I thought our society had out grown away from the mentality of the Salem Witch trials, but I guess I figured wrong. When a tragedy happens, everyone wants to point fingers and come up with an easy solution to the problem, even if that solution could ostracize a whole group of citizens unfairly. As long as it doesn’t affect us, why not, right? Wrong! It’s time our society grows up and realizes that not everything can be wrapped up nicely in 30 – 60 minutes like a television show. As a society we need to get off our social media and start educating ourselves on the world around us.
I am not saying that the killer wasn’t mentally ill, but that’s all that needed to be reported. Putting a name to his illness without 100 percent proof is unconscionable. Yet, tonight NBC news did it again. My colleague pointed out that the information was coming from the shooter’s father and that this time it was a major news show that was airing it, so she trusted the validity. It made me wonder too, so I went on to watch the interview. The only problem when I watched the interview is that the interview wasn’t with the father of the shooter. It was with a reporter who had interviewed the father. In other words, it was one reporter interviewing another reporter on his interpretation of the father’s words. Might I point out that the shooter’s parents were divorced, and it was the mother who had been seeking out the mental health help for her son, so now we have a reporter interviewing another reporter on his interpretation of his interview with the father who was actually giving his second hand knowledge of what the mother had learned year’s earlier. Have any of you played the telephone game as kids? How well did that information get passed around the room? Well, these are adults playing that game, yet it has major affects on a whole group of citizens from around the world.
Instead of pointing fingers at individuals with Asperger’s Syndrome and causing them to be feared like the witches were in Salem, or the Jewish people and the Japanese were during World War II, or even how the Muslims have been since 911. We are so quick to blame a whole group of people for something one or a few might have caused. It is soooo much easier and quicker. Instead we need to educate ourselves about mental health issues and find ways to help each other, instead of judging each other. The time and energy it takes to point fingers and gossip, people could put that towards lifting up their fellow citizens.
I read Frankenstein recently to a group of my college ESL students. I had never read Frankenstein before, and it brought me to tears. The monster wasn’t evil and ugly, society made him evil and ugly. Even his own master turned against him because of how ugly he thought he was. He didn’t bother to get to know him and love him, instead he banished him and sent him out in the cold to die. We do that to people everyday and then people cry out “what’s wrong with the world”? We all need to take a look in our own mirrors, including myself. Not one of us is perfect, and if we quit striving to be perfect and accept each other for who we are, we might be able to walk out of our glass houses and get to know some truly amazing people that we have been building up walls to protect ourselves from.
My husband did not want a child who was different and walked away and started a new life, pretending the first one never existed. He tossed his kids out, just like Frankenstein did his creation. No one ostracizes him! When I searched for positive, male role models in my community for my son, no one stuck with it because it’s not easy to work with a child with special needs, it’s easier to be a big brother to a child who is “normal”, or to go to a foreign country for one week a year to volunteer. Those make better Facebook photos. I never thought I would have to be afraid to say my son has Asperger’s Syndrome, but now due to sensationalized reporting, my son and a whole group of innocent people, have been stigmatized even further. I can only pray that awareness and education will one day reach others in society and that we stop hating a community for what one person did.
Asperger’s Syndrome does not define my child
If people only see Asperger’s Syndrome when they see my son, then they have denied themselves the opportunity of knowing the most loving, creative, intelligent, silly, loyal, compassionate, ( the list is endless) person I know. These characteristics define him, not a diagnosis. If only everyone had the opportunity to see the world through his eyes, their lives would be richer for it. He is my heart!